World Hemophilia Day is an international awareness day for hemophilia and other bleeding disorders. It is held annually on April 17th. Since 1989, World Hemophilia Day is the day the whole bleeding disorders community comes together to celebrate the continuous advances in treatment while raising awareness and bringing understanding and attention to the issues relatedRead More
Ask Me Why I Advocate – The Bobro Family
Meet our Advocacy Ambassadors Mason, Heather, and Marty. Their first experience advocating for the community took place in 2013 when they joined the Chapter for Harrisburg Day. They decided to join our advocacy efforts in order to give back to those who helped and supported them when Mason was first diagnosed with Factor X DeficiencyRead More
Update on Chapter Events and the Coronavirus
In an effort to make decisions with the well being of our community and patients in mind, we have continued to monitor the rapidly changing information surrounding the Coronavirus (COVID-19) outbreak; including guidelines from federal, state, and local authorities. We have decided to postpone or cancel the following events: March 21- Education Day is Postponed Read More
One Lucky Night at Bingo for Bleeding Disorders!
On February 6, 2020, Unite for Bleeding Disorders Walk Team, Rolling for Ryker, with support from the Western Pennsylvania Chapter of the National Hemophilia Foundation hosted a bingo fundraiser at Red Fox Winery in Hickory, PA. Red Fox Winery ran the bingo games, selling bingo cards for $2 per card, and generously donated 10% ofRead More
Community Strikes Out Bleeding Disorders! – Thank You!
The Seventh Annual Bowling for Bleeding Disorders fundraiser was held at Paradise Island Bowl in Neville Island, Pennsylvania on Sunday, February 9, 2020. The cost to attend was $25 per participant which included an event t-shirt, shoe rental, bowling, pizza, wings, and unlimited soft drinks. All 16 lanes were filled as 75 bowlers competed forRead More
Bowling for Bleeding Disorders
This is the last day to register for our Bowling for Bleeding Disorders on February 9th and be guaranteed a t-shirt in your size! Join us for a super afternoon of bowling, pizza, and wings as we raise money for the bleeding disorders community! Register today at https://give.classy.org/bowling4bleeding
7th Annual Take A Bough Returns as a Huge Success!
The 7th Annual Take A Bough was held at Gaetanos Banquet Center on Banksville Road. This year marked the return of the beloved Chapter event after four years! Thanks to the support from our sponsors, donors, and patrons, we raised over $16,000! We are extremely grateful for everyone who participated in Take A Bough thisRead More
Ballers for Bleeding Disorders
On September 15, 2019, Erek Domowicz hosted a paintball tournament, Ballers for Bleeding Disorders, at Three Rivers Paintball to support the Western Pennsylvania Chapter of the National Hemophilia Foundation. Erek is a senior at Seneca Valley and this was his senior graduation project. Twenty-two people played in the tournament. The cost was $40 per personRead More
2019 Unite for Bleeding Disorders Walk, Run For Their Lives 5K, and Cornhole Tournament
This year, our 11th Annual Unite for Bleeding Disorders Walk, 10th Annual Run for their Lives 5K, and 7th Semi-Annual Cornhole Tournament all moved to a brand new location! The festivities took place at the North Park Swimming Pool Lot! These events brought friends and families together to raise over $75,000 to support the bleedingRead More
Star 100.7 FM with Kelly – 8/13/19
On August 14th, Kara, Jessica, and Mindy Perry-Stern, the 2019 Walk Chair, made an appearance on Wish 100.7 FM! They were interviewed by Kelly and talked about the bleeding disorders community, the Run for Their Lives 5K, the 7th semi-annual cornhole tournment, and of course, the Walk! While the interview only lasted about 2 minutes,Read More
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