In an effort to make decisions with the wellbeing of our community and patients in mind, we have continued to monitor the rapidly changing information surrounding the Coronavirus (COVID-19) outbreak; including guidelines from federal, state, and local authorities. We have made the tough decision to move our 2020 Unite for Bleeding Disorders Walk virtual. Our
Yancey Thigpen will be calling our bingo game on May 20th! Join us for a fun night of virtual bingo! RSVP before 3 p.m. on Wednesday, May 20th by emailing firstname.lastname@example.org with your first and last name. Please put Hemophilia Bingo as the email subject.
World Hemophilia Day was celebrated on Friday, April 17, 2020. This marked the 30th World Hemophilia Day! Community members shared what the day meant to them by wearing red, lighting red candles, or putting a red light bulb in their porch. Stephanie S. is the mother of a daughter diagnosed with VWD. She said, “Samantha
With a statewide order to stay at home, many are beginning to feel overwhelmed. Some have lost their jobs, while others must balance work and taking care of children. Pennsylvania has created a new toll-free line to offer assistance and support to those in need. The number to call is 1-855-284-2494. For TTY, dial 724-631-5600.
CLICK HERE TO REGISTER When: September 12, 2020 Where: North Park Swimming Pool Loop S. Ridge Drive Allison Park, PA 15101 We hope you will join us at the North Park Swimming Pool Loop on Saturday, September 12th for our 12th Annual Walk!! This is a day where our community and everyone who supports it
Following the success of the first-ever Breaking Through! Musical Theater Intensive in New York City in 2018 and the nationwide Breaking Through! Chapter Workshops in 2019, Believe Limited is thrilled to announce that the application window for the 2020 Breaking Through! Musical Theater Intensives – to be held in Los Angeles and Chicago – is
Sports and injuries go hand in hand. What generally happens to a player if they get hurt? Maybe they’ll need crutches for a few weeks, take some pain medication, get some bed rest and they’ll be good as new. Unfortunately, children and teens affected by a bleeding disorder do not have an easy or speedy
Team Jaxson comes together for the walk each year to support Kelly and Josh Baker’s five year old son, Jaxson. When he was seven months old, he was diagnosed with severe Type A Hemophilia. Through his diagnosis, Kelly learned that she was also a carrier. Kelly and Josh also have an 11 year-old daughter, Analise,
The deadline to apply for the WPCNHF Scholarship is this Friday, June 28th! All applications must be received or postmarked by this date. Late or incomplete applications will not be accepted. This scholarship is open to any person or immediate family member of a person with hemophilia, von Willebrand Disease, or other inherited bleeding disorder. The person
The team captain of Charlotte’s Hemo Hero’s is Charlotte’s mother, Jamie Kimmel. Charlotte was diagnosed with Von Williebrand Disease Type 3 in March of 2015 after she had a bad nose bleed that lasted overnight. After a week-long stay at the Children’s Hospital of Pittsburgh, she started receiving treatment at the Hemophilia Treatment Center of Western