You Can Make a Difference!
You have the power to impact the future of your own access to better treatment and care through your own advocacy. Policymakers in Harrisburg, PA and Washington, DC need to hear from you in order to make educated and informed decisions on legislation impacting you and your family. Their awareness of bleeding disorders starts with you. Become your own advocate and make a difference.
What Can You Do to Make a Difference?
- Become a WPCNHF Advocacy Ambassador
- Understand the legislative process for the federal government
- Understand the legislative process for the PA state government
- Understand the issues
- Know who your legislators are
- Research your legislators voting records, biographies, and district to understand their positions
- Vote on Election Day
- Introduce yourself to your legislators and the members of their staff
- Communicate regularly with your legislators and the members of their staff
How Can You Engage Your Legislators?
As a constituent, advocacy is a powerful tool. There are many ways you can reach your legislators. The most common and effective forms are writing a letter, sending an email, calling your legislator, and meeting with your legislator and/or their staff.
Before you do this, you must develop an effective and meaningful message. Here are a few tips for sharpening your message:
- Identify the issue you would like to discuss and include a bill number, if applicable
- If you are a constituent, let your legislator know
- Share your personal story (or your family member’s story)
- Use facts to support your position
- Tell your legislator the action you would like him/her to take
- Thank your legislator/staff member for their time and ask if you may follow-up with him/her
Remember, you are your own best advocate. Let your voice be heard.
Should you require additional materials, please contact WPCNHF staff at 724-741-6160.