Make an Impact by Writing Letters to Your Legislators
Click here to download a sample letter to send to your legislator. Be sure to customize your letter to include the HTC you are treated at and include personal stories why funding for the Hemophilia Treatment Centers is important to you.
- There are 7 federally supported hemophilia treatment centers (HTCs) but only 5 HealthyChoices regions, with 4 HTCs located in Philadelphia.
- While applicants may apply for multiple regions, having only one grant awarded per region is problematic when four world class HTCs are in one region (Philadelphia). As proposed, the four HTCs in Philadelphia will be pitted against each other competing for funding.
- When we voiced this concern in the meeting with the Department of Health they told us they expect the Treatment Centers to team up to apply for funding. But this only creates more problems as who will be responsible for the administrative burden and how will the funding be divided between them?