Show your support for the bleeding disorders community of Western Pennsylvania by showing off your Unite pride! The Western Pennsylvania Chapter of the National Hemophilia Foundation is selling shirts and tank tops to raise funds for our Unite for Bleeding Disorders Walk! Check out our shirts and click the link for more information. Shirts can
This year, we celebrated our 12th Annual Unite for Bleeding Disorders Walk! The Walk was held on Saturday, October 10th and coincided with the National Hemophilia Foundation’s (NHF) nationwide Unite Day. While our walk moved to a virtual event and looked different than usual, friends, family, and supporters still came together to raise nearly $50,000
Register in advance at: https://us02web.zoom.us/meeting/register/tZwpf–grDMvGNdNSfe_IlG-CrYUEcJDCLBE After registering, you will receive a confirmation email containing information about joining the meeting. You are welcome to attend at anytime throughout the day! We can’t wait to see you there! If you would like a breakout room for your team e-mail Jessica at firstname.lastname@example.org.
Sammi’s Supporters are inspired by three-year old Samantha who is diagnosed with von Willebrand Disease (VWD). At 5 weeks old, her family discovered bruises on her body. After many tests, she was formally diagnosed at 18 months old. Around that time, Samantha’s mom, Stephanie, found out she also has VWD and so does her grandmother!
VWD Awareness The website thinkvwd.com has been launched with a PSA featuring Alex Borstein to help raise awareness of VWD. VWD, or von Willebrand disease, is the most common inherited bleeding disorder caused by a deficient or defective clotting protein called von Willebrand factor. Some people may never know they have VWD unless they experience
Register at trpaintball.com go to events>Ballers for Bleeding Disorders 2020
In the third in a series of three instructional videos, professional golfer with Hemophilia A, Perry Parker talks about living with a bleeding disorder, while teaching some fundamentals of golf: mastering your full swing.
“Hi! My name is Tori and I’m the team captain for Tori’s Team. I walk for my sister and dad who, like me, all have Von Willebrand’s Disease. I participate in the walk as a way to give back to the organization that has given me so many opportunities. It’s a great way to raise
Team Rolling for Ryker’s inspiration is a two-year-old boy named Ryker, who was diagnosed with Hemophilia A at 7 weeks old. “[I was] scared and I remember thinking it was an incorrect diagnosis,” team captain and Ryker’s mom, Mindy, said. “I thought they would redo his blood test and find out they were wrong… that in
In the second in a series of three instructional videos, professional golfer with Hemophilia A, Perry Parker talks about living with a bleeding disorder, while teaching some fundamentals of golf: putting, chipping and sand shots.