The Western and Eastern PA Hemophilia Foundations are coming together for a Call to Advocacy! Join us for a Zoom Meeting on Thursday, May 14th at 6pm to learn about issues affecting the bleeding disorders community in PA and what you can do to help create change. RSVP with your first and last name to
How do you get rid of those “almost Friday but not quite Friday” blues? You join us in celebrating #ThankfulThursday! Today we’d like to give a big thank you to John! John is diagnosed with Factor V Deficiency and has been a member of the Chapter for 5 years. Prior to our chapter, he was
WPCNHF provides this current list of scholarships for general information purposes only. Prospective candidates will need to check with the individual sponsor or administrator of a given scholarship program for more details on specific criteria or procedures for submitting an application. Scholarships are listed based on application deadline. Teen Impact Awards and the Adam Lynch
World Hemophilia Day was celebrated on Friday, April 17, 2020. This marked the 30th World Hemophilia Day! Community members shared what the day meant to them by wearing red, lighting red candles, or putting a red light bulb in their porch. Stephanie S. is the mother of a daughter diagnosed with VWD. She said, “Samantha
Thursday, April 23, 2020 | 6:00 – 7:00 pm Hosted by John Yunghans This event is open to men age 18 and over who have a bleeding diagnosis. To register: Send an e-mail to email@example.com by 3:00 pm on April 23rd. The phone number and online link will only be sent to those who register.
Happy #ThankfulThursday! We are happy to say thank you to Scott! Scott has been a member of our Chapter since 1999 and is closely connected to the community. He is diagnosed with von Willebrand Disease, along with his two sons, Colin and Erek, his father, and siblings. Scott volunteered at our Unite for Bleeding Disorders Walk
With a statewide order to stay at home, many are beginning to feel overwhelmed. Some have lost their jobs, while others must balance work and taking care of children. Pennsylvania has created a new toll-free line to offer assistance and support to those in need. The number to call is 1-855-284-2494. For TTY, dial 724-631-5600.
HARRISBURG/PHILADELPHIA/PITTSBURGH – Friday, April 17, 2020 is “World Hemophilia Day,” which is an annual international awareness day for hemophilia and other bleeding disorders. Since 1989, World Hemophilia Day is the day the whole bleeding disorders community comes together to celebrate the continuous advances in treatment while raising awareness and bringing understanding and attention to the
Make an Impact by Writing Letters to Your Legislators Click here to download a sample letter to send to your legislator. Be sure to customize your letter to include the HTC you are treated at and include personal stories why funding for the Hemophilia Treatment Centers is important to you. Local Issues The Specialty Care Programs
For #ThankfulThursday, we want to give a huge thank you to Mindy! Mindy has been involved with the Chapter since 2018 when her 2-year-old son, Ryker, was diagnosed with Hemophilia A at 7 weeks old. This is how Mindy found out her grandfather had hemophilia and that she was a carrier. Since joining the Chapter, Mindy