World Hemophilia Day is an international awareness day for hemophilia and other bleeding disorders. It is held annually on April 17th. Since 1989, World Hemophilia Day is the day the whole bleeding disorders community comes together to celebrate the continuous advances in treatment while raising awareness and bringing understanding and attention to the issues related
This #ThankfulThursday we want to give a huge thank you to Eileen! Eileen became involved with WPCNHF when her four-year-old grandson, Conor, was born with severe Hemophilia type A. She’s volunteered for two years, helping with Chapter mailings (some with over 700 pieces!) and raising money with her daughter-in-law, Emily, through painting and car wash fundraisers. “The
This event was originally scheduled for Saturday, March 21, 2020. This event will now be held on Saturday, August 29, 2020. Register by August 19, 2020 to email@example.com or 724-741-6160. There’s no cost to attend this event.
Happy #ThankfulThursday! This Thursday, we are thankful for Kelly. Kelly is personally connected to WPCNHF because her 7-year-old son, Jaxon, has Severe Type A Hemophilia. She has been involved with the Chapter for six years participating in programs and raising critical funds for our annual Unite for Bleeding Disorders Walk. Last year, Kelly held a fundraiser
Meet our Advocacy Ambassadors Mason, Heather, and Marty. Their first experience advocating for the community took place in 2013 when they joined the Chapter for Harrisburg Day. They decided to join our advocacy efforts in order to give back to those who helped and supported them when Mason was first diagnosed with Factor X Deficiency
It’s Thursday, and you know what that means! For #ThankfulThursday we want to say thank you to Chris. He has been a member of our chapter since he was about 18 years old. Chris and his 9-year-old daughter are both diagnosed with Hemophilia B. He made it a priority to connect with other individuals living
If you have questions, do not hesitate to call the Center at any time. The Hemophilia Center of Western PA can be reached at 412-209-7280.
Prior to Washington Days, I wasn’t typically involved in the Bleeding Disorder Community and felt as though I ought to contribute to the movement. My high school required service hours for graduation, and I saw this event as a unique opportunity toward advancing advocacy on behalf of all members of the Bleeding Disorder Community. As
Gettin’ in the Game Junior National Championship 2020 Download the application here: Gettin’ in the Game JNC application 2020 CSL Behring will be hosting the 2020 Gettin’ in the Game℠ Junior National Championship the weekend of November 6-8, 2020, in Phoenix, Arizona. This will be CSL Behring’s 19th annual national competition. Chapters throughout the U.S.
Effective Monday, March 16 the WPCNHF Office will be closed to the public and chapter staff will be working remotely. We are taking this action in accordance with the guidance from public health experts to limit contact through social distancing. The offices will be closed but chapter staff will still be answering calls and voicemails,