At the Western Pennsylvania Chapter of the National Hemophilia Foundation we are lucky to have many hard working and passionate volunteers who are willing to donate their time and resources so that the Chapter can fulfill its mission. In total this past year, volunteers have donated over 650 hours to help with various Chapter events
Join the Western Pennsylvania Bleeding Disorders community VIRTUALLY on Saturday, October 10th as we come together to celebrate! Our Walk was originally scheduled to be held in person at the North Park Swimming Pool, but due to COVID-19, we’ve made the tough decision to go virtual. It will be held on Saturday, October 10th
There is still time to register to attend our Virtual Annual Meeting tonight! Learn more about the services the Chapter offers, help us recognize our top volunteers, hear from our sponsors, and help us kick off the Unite for Bleeding Disorders Walk! This event is open to members of our Chapter with bleeding disorders and
Join our speaker, Miriam Goldstein, Policy Director for the Hemophilia Federation of America, for a discussion about emerging trends in the insurance landscape. This program will be held virtually over Zoom and is open to all men of the Chapter – men with a bleeding disorder, spouses, partners, and fathers/guardians of someone with a bleeding
RSVP by Thursday, July 30th by emailing firstname.lastname@example.org with your name, number of those participating in the paint night, and your address to send the paint supplies. The Zoom link will be sent to those who register.
You’re invited to HELLO TALK®: Understanding VWD, sponsored by Takeda, at 6:00 PM on Tuesday, July 14, 2020. Register today by emailing email@example.com. This program is intended for patients and caregivers. Caregivers include individuals involved with or impacted by the patient’s bleeding disorder and who could benefit from the program education. Caregiver may include parents/guardians,
Email firstname.lastname@example.org by 3pm on June 16th using the subject line Game Night. We hope to see you there!
Register by emailing email@example.com by 3pm on Tuesday, June 9th. Please include your first and last name and Gene Therapy in the subject line.
House Bill 2387 Signed in House, May 28, 2020 Signed in Senate, May 28, 2020 Presented to the Governor, May 28, 2020 Approved by the Governor, May 29, 2020 We are happy to let you know on Friday, May 29, 2020 a 5 month budget was passed with the hemophilia line item fully funded at $400,000 (5/12th). You can view HB 2387 here. The