We’re excited to announce the Hemophilia SNF Access Act was included in the end-of-year omnibus federal spending and economic relief package passed by Congress on December 21, 2020 (HR 133, The Consolidated Appropriations Act, 2021). The bill now goes to President Trump for his signature, which is expected in the coming days. The bill wasRead More
Insurance Department Announces Lower ACA Individual Plan Health Insurance Rates, Attributes Them to New State-Based Exchange and Reinsurance Program
Harrisburg, PA – As the Wolf Administration pushes back on federal attempts to dismantle the Affordable Care Act amid a pandemic and the start of flu season, the Department of Insurance today announced Pennsylvania’s approved 2021 individual and small group Affordable Care Act (ACA) health insurance rates, highlighting a decrease in individual market rates attributable to the new state-based exchange and reinsurance program. “ThisRead More
Pennsylvania Passes 5 Month Budget with the Hemophilia Line Item Fully Funded
House Bill 2387 Signed in House, May 28, 2020 Signed in Senate, May 28, 2020 Presented to the Governor, May 28, 2020 Approved by the Governor, May 29, 2020 We are happy to let you know on Friday, May 29, 2020 a 5 month budget was passed with the hemophilia line item fully funded at $400,000 (5/12th). You can view HB 2387 here. TheRead More
Call to Advocacy – Virtual Event – May 14th
The Western and Eastern PA Hemophilia Foundations are coming together for a Call to Advocacy! Join us for a Zoom Meeting on Thursday, May 14th at 6pm to learn about issues affecting the bleeding disorders community in PA and what you can do to help create change. RSVP with your first and last name toRead More
Pennsylvania’s Hemophilia Foundations Recognize World Hemophilia Day, April 17, 2020
HARRISBURG/PHILADELPHIA/PITTSBURGH – Friday, April 17, 2020 is “World Hemophilia Day,” which is an annual international awareness day for hemophilia and other bleeding disorders. Since 1989, World Hemophilia Day is the day the whole bleeding disorders community comes together to celebrate the continuous advances in treatment while raising awareness and bringing understanding and attention to theRead More
Make an Impact by Writing Letters to Your Legislators
Make an Impact by Writing Letters to Your Legislators Click here to download a sample letter to send to your legislator. Be sure to customize your letter to include the HTC you are treated at and include personal stories why funding for the Hemophilia Treatment Centers is important to you. Local Issues The Specialty Care ProgramsRead More
Washington Days 2020
Prior to Washington Days, I wasn’t typically involved in the Bleeding Disorder Community and felt as though I ought to contribute to the movement. My high school required service hours for graduation, and I saw this event as a unique opportunity toward advancing advocacy on behalf of all members of the Bleeding Disorder Community. AsRead More
Update on Chapter Events and the Coronavirus
In an effort to make decisions with the well being of our community and patients in mind, we have continued to monitor the rapidly changing information surrounding the Coronavirus (COVID-19) outbreak; including guidelines from federal, state, and local authorities. We have decided to postpone or cancel the following events: March 21- Education Day is Postponed Read More
Advocacy Ambassador Program
Advocacy Ambassador Program To help drive the efforts of the Pennsylvania Hemophilia Foundations, we are launching an Advocacy Ambassador Program. Advocacy Ambassadors are volunteers in a leadership position responsible for helping to establish and build a strong grassroots network of bleeding disorders advocates within Pennsylvania. The goal is to increase awareness of Hemophilia, von WillebrandRead More
Educational Grants are Available for HFA’s Symposium
Educational Grants are Available for HFA’s Symposium The Western Pennsylvania Chapter of the National Hemophilia Foundation (WPCNHF) is pleased to offer Educational Grants for the Hemophilia Federation of America’s Symposium, April 23-26, 2020 in Baltimore, MD. Click here to download the application. The Symposium enables our community to come together and exchange information on aRead More
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