WPCNHF

  • Who We Are
    • What We Do
    • Board of Directors & Staff
    • Patient Assistance
    • Contact Us
  • Bleeding Disorders
    • Hemophilia
    • Von Willebrand Disease
  • Get Involved
    • Membership
    • Advocacy
    • Volunteer Opportunities
    • Donate
    • Host a DIY Fundraiser
  • News
    • Patient Education Videos
    • Newsletter Archives
    • Blog
    • Resources
  • Events

Congressional Enactment of The Hemophilia SNF Access Act

December 22, 2020 By Kara Dornish Leave a Comment

We’re excited to announce the Hemophilia SNF Access Act was included in the end-of-year omnibus federal spending and economic relief package passed by Congress on December 21, 2020 (HR 133, The Consolidated Appropriations Act, 2021). The bill now goes to President Trump for his signature, which is expected in the coming days. The bill wasRead More

Filed Under: Advocacy

Insurance Department Announces Lower ACA Individual Plan Health Insurance Rates, Attributes Them to New State-Based Exchange and Reinsurance Program 

October 29, 2020 By Kara Dornish Leave a Comment

Harrisburg, PA – As the Wolf Administration pushes back on federal attempts to dismantle the Affordable Care Act amid a pandemic and the start of flu season, the Department of Insurance today announced Pennsylvania’s approved 2021 individual and small group Affordable Care Act (ACA) health insurance rates, highlighting a decrease in individual market rates attributable to the new state-based exchange and reinsurance program. “ThisRead More

Filed Under: Advocacy

Pennsylvania Passes 5 Month Budget with the Hemophilia Line Item Fully Funded

June 3, 2020 By Kara Dornish Leave a Comment

House Bill 2387 Signed in House, May 28, 2020 Signed in Senate, May 28, 2020 Presented to the Governor, May 28, 2020 Approved by the Governor, May 29, 2020   We are happy to let you know on Friday, May 29, 2020 a 5 month budget was passed with the hemophilia line item fully funded at $400,000 (5/12th). You can view HB 2387 here. TheRead More

Filed Under: Advocacy

Call to Advocacy – Virtual Event – May 14th

May 1, 2020 By Kara Dornish Leave a Comment

The Western and Eastern PA Hemophilia Foundations are coming together for a Call to Advocacy! Join us for a Zoom Meeting on Thursday, May 14th at 6pm to learn about issues affecting the bleeding disorders community in PA and what you can do to help create change. RSVP with your first and last name toRead More

Filed Under: Advocacy, Program

Pennsylvania’s Hemophilia Foundations Recognize World Hemophilia Day, April 17, 2020

April 13, 2020 By Jessica Lee Leave a Comment

HARRISBURG/PHILADELPHIA/PITTSBURGH – Friday, April 17, 2020 is “World Hemophilia Day,” which is an annual international awareness day for hemophilia and other bleeding disorders.  Since 1989, World Hemophilia Day is the day the whole bleeding disorders community comes together to celebrate the continuous advances in treatment while raising awareness and bringing understanding and attention to theRead More

Filed Under: Advocacy Tagged With: light it up red, WHD2020, world hemophilia day

Make an Impact by Writing Letters to Your Legislators

April 10, 2020 By Kara Dornish Leave a Comment

Make an Impact by Writing Letters to Your Legislators Click here to download a sample letter to send to your legislator. Be sure to customize your letter to include the HTC you are treated at and include personal stories why funding for the Hemophilia Treatment Centers is important to you. Local Issues The Specialty Care ProgramsRead More

Filed Under: Advocacy

Washington Days 2020

March 18, 2020 By Jessica Lee Leave a Comment

Prior to Washington Days, I wasn’t typically involved in the Bleeding Disorder Community and felt as though I ought to contribute to the movement. My high school required service hours for graduation, and I saw this event as a unique opportunity toward advancing advocacy on behalf of all members of the Bleeding Disorder Community. AsRead More

Filed Under: Advocacy

Update on Chapter Events and the Coronavirus

March 12, 2020 By Kara Dornish Leave a Comment

In an effort to make decisions with the well being of our community and patients in mind, we have continued to monitor the rapidly changing information surrounding the Coronavirus (COVID-19) outbreak; including guidelines from federal, state, and local authorities. We have decided to postpone or cancel the following events: March 21- Education Day  is Postponed Read More

Filed Under: Advocacy, Fundraiser, Program

Advocacy Ambassador Program

February 24, 2020 By Kara Dornish Leave a Comment

Advocacy Ambassador Program To help drive the efforts of the Pennsylvania Hemophilia Foundations, we are launching an Advocacy Ambassador Program. Advocacy Ambassadors are volunteers in a leadership position responsible for helping to establish and build a strong grassroots network of bleeding disorders advocates within Pennsylvania. The goal is to increase awareness of Hemophilia, von WillebrandRead More

Filed Under: Advocacy

Educational Grants are Available for HFA’s Symposium

January 22, 2020 By Kara Dornish Leave a Comment

Educational Grants are Available for HFA’s Symposium The Western Pennsylvania Chapter of the National Hemophilia Foundation (WPCNHF) is pleased to offer Educational Grants for the Hemophilia Federation of America’s Symposium, April 23-26, 2020 in Baltimore, MD. Click here to download the application. The Symposium enables our community to come together and exchange information on aRead More

Filed Under: Advocacy, Program

  • 1
  • 2
  • 3
  • …
  • 5
  • Next Page »
TwitterFacebookYoutube
Join Our Mailing ListSubscribe
You Can Help Make a DifferenceJOIN US

Interested in Donating?

There are so many great ways to get involved. Volunteer your time or simply provide a financial donation. Every dollar makes a difference.
DONATE

20411 Rt. 19, Unit 14, Cranberry Township, PA 16066

Site Designed and Developed by OrgSpring.com

  • Facebook
  • Twitter
  • Privacy Policy
  • Terms & Conditions
  • Medical Disclaimer
  • Patient Education Videos
  • Financials
  • NHF
  • HFA
  • Mid-Atlantic Region III Hemophilia Treatment Centers

Western Pennsylvania Chapter of the National Hemophilia Foundation, All Rights Reserved

MENU
  • Who We Are
    • What We Do
    • Board of Directors & Staff
    • Patient Assistance
    • Contact Us
  • Bleeding Disorders
    • Hemophilia
    • Von Willebrand Disease
  • Get Involved
    • Membership
    • Advocacy
    • Volunteer Opportunities
    • Donate
    • Host a DIY Fundraiser
  • News
    • Patient Education Videos
    • Newsletter Archives
    • Blog
    • Resources
  • Events