Urge your state senator to support Senate Bill 196, which would help Pennsylvanians afford the treatments they need by ensuring all co-pay assistance counts towards out-of-pocket requirements. Many individuals in the bleeding disorders community rely on co-pay assistance from drug manufacturers and charities to maintain access to their high-cost treatments. This financial assistance is oftenRead More
Pennsylvania’s Hemophilia Foundations Recognize World Hemophilia Day, April 17, 2021
HARRISBURG/PHILADELPHIA/PITTSBURGH – Saturday, April 17, 2021 is “World Hemophilia Day,” which is an annual international awareness day for hemophilia and other bleeding disorders. Since 1989, World Hemophilia Day is the day the whole bleeding disorders community comes together to celebrate the continuous advances in treatment while raising awareness and bringing understanding and attention to theRead More
Governor Wolf Proclaims April 17, 2021 World Hemophilia Day in PA!
WPCNHF is proud to share this proclamation from Governor Tom Wolf proclaiming April 17, 2021 World Hemophilia Day in Pennsylvania!
Co-Pay Assistance Survey
Do you use copay assistance to afford treatment for your bleeding disorder? Have you faced high out-of-pocket costs for your treatment? If you answered yes to either of these questions, we want to hear from you! An insurance program has put copay assistance at risk. These programs collect the copay assistance but do not countRead More
Congressional Enactment of The Hemophilia SNF Access Act
We’re excited to announce the Hemophilia SNF Access Act was included in the end-of-year omnibus federal spending and economic relief package passed by Congress on December 21, 2020 (HR 133, The Consolidated Appropriations Act, 2021). The bill now goes to President Trump for his signature, which is expected in the coming days. The bill wasRead More
Insurance Department Announces Lower ACA Individual Plan Health Insurance Rates, Attributes Them to New State-Based Exchange and Reinsurance Program
Harrisburg, PA – As the Wolf Administration pushes back on federal attempts to dismantle the Affordable Care Act amid a pandemic and the start of flu season, the Department of Insurance today announced Pennsylvania’s approved 2021 individual and small group Affordable Care Act (ACA) health insurance rates, highlighting a decrease in individual market rates attributable to the new state-based exchange and reinsurance program. “ThisRead More
Pennsylvania Passes 5 Month Budget with the Hemophilia Line Item Fully Funded
House Bill 2387 Signed in House, May 28, 2020 Signed in Senate, May 28, 2020 Presented to the Governor, May 28, 2020 Approved by the Governor, May 29, 2020 We are happy to let you know on Friday, May 29, 2020 a 5 month budget was passed with the hemophilia line item fully funded at $400,000 (5/12th). You can view HB 2387 here. TheRead More
Call to Advocacy – Virtual Event – May 14th
The Western and Eastern PA Hemophilia Foundations are coming together for a Call to Advocacy! Join us for a Zoom Meeting on Thursday, May 14th at 6pm to learn about issues affecting the bleeding disorders community in PA and what you can do to help create change. RSVP with your first and last name toRead More
Pennsylvania’s Hemophilia Foundations Recognize World Hemophilia Day, April 17, 2020
HARRISBURG/PHILADELPHIA/PITTSBURGH – Friday, April 17, 2020 is “World Hemophilia Day,” which is an annual international awareness day for hemophilia and other bleeding disorders. Since 1989, World Hemophilia Day is the day the whole bleeding disorders community comes together to celebrate the continuous advances in treatment while raising awareness and bringing understanding and attention to theRead More
Make an Impact by Writing Letters to Your Legislators
Make an Impact by Writing Letters to Your Legislators Click here to download a sample letter to send to your legislator. Be sure to customize your letter to include the HTC you are treated at and include personal stories why funding for the Hemophilia Treatment Centers is important to you. Local Issues The Specialty Care ProgramsRead More
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