Team Captain, Stephanie, and her family joined the Unite for Bleeding Disorders Walk in 2019 under the name Sammi’s Supporters. This will be their third time walking with the community! This year, they’ve changed their team name from Sammi’s Supporters to Factor 5 to celebrate Samantha, Stephanie, and their newborn son, Lev. All three members
Thank you to everyone who attended our bingo fundraiser last night! We are happy to report over $700 was raised for the bleeding disorders community of Western PA! All the money raised at this event will provide medical and emergency assistance to our members in need, as well as provide support groups and free educational
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This Giving Tuesday we are giving thanks to the individuals in our community that go above and beyond to support the Western Pennsylvania Chapter of the National Hemophilia Foundation! Because of you, we are able to provide educational and social programming, patient assistance, and advocacy training at no cost to our members. You are the #Rare Difference. 3 Ways You
Register in advance at: https://us02web.zoom.us/meeting/register/tZwpf–grDMvGNdNSfe_IlG-CrYUEcJDCLBE After registering, you will receive a confirmation email containing information about joining the meeting. You are welcome to attend at anytime throughout the day! We can’t wait to see you there! If you would like a breakout room for your team e-mail Jessica at firstname.lastname@example.org.
Register at trpaintball.com go to events>Ballers for Bleeding Disorders 2020
Join the Western Pennsylvania Bleeding Disorders community VIRTUALLY on Saturday, October 10th as we come together to celebrate! Our Walk was originally scheduled to be held in person at the North Park Swimming Pool, but due to COVID-19, we’ve made the tough decision to go virtual. It will be held on Saturday, October 10th
World Hemophilia Day is an international awareness day for hemophilia and other bleeding disorders. It is held annually on April 17th. Since 1989, World Hemophilia Day is the day the whole bleeding disorders community comes together to celebrate the continuous advances in treatment while raising awareness and bringing understanding and attention to the issues related
Meet our Advocacy Ambassadors Mason, Heather, and Marty. Their first experience advocating for the community took place in 2013 when they joined the Chapter for Harrisburg Day. They decided to join our advocacy efforts in order to give back to those who helped and supported them when Mason was first diagnosed with Factor X Deficiency
In an effort to make decisions with the well being of our community and patients in mind, we have continued to monitor the rapidly changing information surrounding the Coronavirus (COVID-19) outbreak; including guidelines from federal, state, and local authorities. We have decided to postpone or cancel the following events: March 21- Education Day is Postponed