Participate TODAY in a Community Survey on Bleeding Disorder Research Priorities We are working to define those areas of research for today that can make the greatest difference in living with a bleeding disorder. To do this, we need to hear from YOU. Help us identify those areas that matter most for people with bleeding
Register in advance at: https://us02web.zoom.us/meeting/register/tZwpf–grDMvGNdNSfe_IlG-CrYUEcJDCLBE After registering, you will receive a confirmation email containing information about joining the meeting. You are welcome to attend at anytime throughout the day! We can’t wait to see you there! If you would like a breakout room for your team e-mail Jessica at email@example.com.
Sammi’s Supporters are inspired by three-year old Samantha who is diagnosed with von Willebrand Disease (VWD). At 5 weeks old, her family discovered bruises on her body. After many tests, she was formally diagnosed at 18 months old. Around that time, Samantha’s mom, Stephanie, found out she also has VWD and so does her grandmother!
VWD Awareness The website thinkvwd.com has been launched with a PSA featuring Alex Borstein to help raise awareness of VWD. VWD, or von Willebrand disease, is the most common inherited bleeding disorder caused by a deficient or defective clotting protein called von Willebrand factor. Some people may never know they have VWD unless they experience
At the Western Pennsylvania Chapter of the National Hemophilia Foundation we are lucky to have many hard working and passionate volunteers who are willing to donate their time and resources so that the Chapter can fulfill its mission. In total this past year, volunteers have donated over 650 hours to help with various Chapter events
It’s #ThankfulThursday again, and we would like to give a shout out to Monica! Monica has supported the Chapter for about one year. While she is not genetically connected to a bleeding disorder, she was introduced to WPCNHF through the Perry and Stern families. Monica is a self-employed State Farm Agent and not only sponsored our Unite
How do you get rid of those “almost Friday but not quite Friday” blues? You join us in celebrating #ThankfulThursday! Today we’d like to give a big thank you to John! John is diagnosed with Factor V Deficiency and has been a member of the Chapter for 5 years. Prior to our chapter, he was
Happy #ThankfulThursday! We are happy to say thank you to Scott! Scott has been a member of our Chapter since 1999 and is closely connected to the community. He is diagnosed with von Willebrand Disease, along with his two sons, Colin and Erek, his father, and siblings. Scott volunteered at our Unite for Bleeding Disorders Walk
For #ThankfulThursday, we want to give a huge thank you to Mindy! Mindy has been involved with the Chapter since 2018 when her 2-year-old son, Ryker, was diagnosed with Hemophilia A at 7 weeks old. This is how Mindy found out her grandfather had hemophilia and that she was a carrier. Since joining the Chapter, Mindy
World Hemophilia Day is an international awareness day for hemophilia and other bleeding disorders. It is held annually on April 17th. Since 1989, World Hemophilia Day is the day the whole bleeding disorders community comes together to celebrate the continuous advances in treatment while raising awareness and bringing understanding and attention to the issues related