Urge your Pennsylvania state legislator to ensure all co-pays count and support new bills aimed at reforming the harmful insurance practices of prior authorization and step therapy! Read on to learn more about the bills being introduced in the Pennsylvania General Assembly. Urge Your Pennsylvania State Representative and State Senator to Support HB/SB 225 NewRead More
Urge Your Pennsylvania State Legislator to Ensure All Co-Pays Count
Urge your state senator to support Senate Bill 196, which would help Pennsylvanians afford the treatments they need by ensuring all co-pay assistance counts towards out-of-pocket requirements. Many individuals in the bleeding disorders community rely on co-pay assistance from drug manufacturers and charities to maintain access to their high-cost treatments. This financial assistance is oftenRead More
Governor Wolf Proclaims April 17, 2021 World Hemophilia Day in PA!
WPCNHF is proud to share this proclamation from Governor Tom Wolf proclaiming April 17, 2021 World Hemophilia Day in Pennsylvania!
Thank You for Virtual Bingo Fundraiser Success
Thank you to everyone who attended our bingo fundraiser last night! We are happy to report over $700 was raised for the bleeding disorders community of Western PA! All the money raised at this event will provide medical and emergency assistance to our members in need, as well as provide support groups and free educationalRead More
We want to hear from you! What do you want to see in research?
Participate TODAY in a Community Survey on Bleeding Disorder Research Priorities We are working to define those areas of research for today that can make the greatest difference in living with a bleeding disorder. To do this, we need to hear from YOU. Help us identify those areas that matter most for people with bleedingRead More
Saturday, October 10th – Virtual Walk Day Schedule of Events
Register in advance at: https://us02web.zoom.us/meeting/register/tZwpf–grDMvGNdNSfe_IlG-CrYUEcJDCLBE After registering, you will receive a confirmation email containing information about joining the meeting. You are welcome to attend at anytime throughout the day! We can’t wait to see you there! If you would like a breakout room for your team e-mail Jessica at jessica@wpcnhf.org.
Meet Sammi’s Supporters
Sammi’s Supporters are inspired by three-year old Samantha who is diagnosed with von Willebrand Disease (VWD). At 5 weeks old, her family discovered bruises on her body. After many tests, she was formally diagnosed at 18 months old. Around that time, Samantha’s mom, Stephanie, found out she also has VWD and so does her grandmother!Read More
VWD Awareness – THINKVWD.COM
VWD Awareness The website thinkvwd.com has been launched with a PSA featuring Alex Borstein to help raise awareness of VWD. VWD, or von Willebrand disease, is the most common inherited bleeding disorder caused by a deficient or defective clotting protein called von Willebrand factor. Some people may never know they have VWD unless they experienceRead More
Thank you Chapter Volunteers of 2020!
At the Western Pennsylvania Chapter of the National Hemophilia Foundation we are lucky to have many hard working and passionate volunteers who are willing to donate their time and resources so that the Chapter can fulfill its mission. In total this past year, volunteers have donated over 650 hours to help with various Chapter eventsRead More
#ThankfulThursday – Monica
It’s #ThankfulThursday again, and we would like to give a shout out to Monica! Monica has supported the Chapter for about one year. While she is not genetically connected to a bleeding disorder, she was introduced to WPCNHF through the Perry and Stern families. Monica is a self-employed State Farm Agent and not only sponsored our UniteRead More
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