The 13th Annual Unite for Bleeding Disorders Walk will be held on Saturday, September 18th. This is our largest fundraising event of the year! It unites families with bleeding disorders and chapters with family, friends, neighbors, and coworkers to support important programs and services to help people with Hemophilia, von Willebrand Disease, and other rare
To RSVP to this program, or for any questions or additional details, please contact email@example.com or call the Chapter office at 724-741-6160 by 3pm on October 3rd.
Meet Michelle and Mike from Team Rolling for Ryker! They walk to celebrate their grandson, Ryker. Their daughter and Ryker’s mom, Mindy, is the team captain of Rolling for Ryker and got Michelle and Mike involved with the Foundation in the first place. “[Mindy] was going to volunteer and she asked us if we could
TO RSVP to this program, or for any questions or additional details, please contact firstname.lastname@example.org or call the Chapter office at 724-741-6160.
Team Red N’ Plenty is made up of Tracy, the team’s captain, and her amazing family! They walk to raise awareness for all bleeding disorders and help increase diagnosis. Tracy’s son was diagnosed with von Willebrand Disease (VWD) when he was in elementary school. Soon after, Tracy and her daughter were also tested and diagnosed
Team Jaxson UNITES to celebrate seven-year-old Jaxson, who was diagnosed with severe hemophilia type A when he was seven months old. His mom, Kelly, is the team’s captain and along with his dad, Josh, and big sister, Analise, they will be walking their 7th bleeding disorders walk this year! Kelly and Josh had no family
Team Rolling for Ryker is celebrating their fourth year Uniting for Bleeding Disorders and walking with the Western Pennsylvania bleeding disorders community! They walk to celebrate 3 year old Ryker, who is diagnosed with mild Hemophilia A. Just seven weeks after Ryker was born, he was diagnosed on Christmas Day after an emergency trip to
Event Day Volunteer Opportunities – Saturday, September 18th The Unite for Bleeding Disorders Walk will take place at the North Park Swimming Pool located on S. Ridge Drive in Allison Park, PA 15101. Set up – Arrive at 5:30 am – 7:30 am – Help set up tables, chairs, and signage. Run Registration & Check-In
Team Captain, Stephanie, and her family joined the Unite for Bleeding Disorders Walk in 2019 under the name Sammi’s Supporters. This will be their third time walking with the community! This year, they’ve changed their team name from Sammi’s Supporters to Factor 5 to celebrate Samantha, Stephanie, and their newborn son, Lev. All three members
The National Hemophilia Foundation (NHF) in partnership with the CDC, would like to invite you, to participate in an anonymous survey. The goal of the survey is to learn more about the knowledge, awareness, and attitudes of the bleeding disorders community towards prophy treatment (proactive treatment to prevent bleeds), as well as to find out