To register, please send your first and last name to rsvp@wpcnhf.org by 3pm on Thursday, July 8th. Please include Spark in the subject line. The link and call-in information will be sent to those who register.
HFA Mental Health First Aid Training on June 26, 2021
Hemophilia Federation of America (HFA) is pleased to offer free Mental Health First Aid training through an internationally renowned program by the National Council for Behavioral Health as part of HFA’s 2021 Mental Health and Wellness Initiative The next training will be Saturday, June 26th from noon-5:00 PM EST/11-4:00 PM CST/10-3:00 MST/ 9-2:00 PST (There isRead More
We Need Your Help! Reach Out to Your Pennsylvania State Legislators!
Urge your Pennsylvania state legislator to ensure all co-pays count and support new bills aimed at reforming the harmful insurance practices of prior authorization and step therapy! Read on to learn more about the bills being introduced in the Pennsylvania General Assembly. Urge Your Pennsylvania State Representative and State Senator to Support HB/SB 225 NewRead More
Study Looks at Neuraxial Anesthesia and Postpartum Complications in Hemophilia
Findings from a recently published study in the Journal of Anesthesia suggest that pregnant patients with hemophilia whose factor VIII or IX levels drop below 50% at the time of receiving neuraxial anesthesia are more likely to experience postpartum complications. Neuraxial anesthesia refers to the administration of local anesthetics and analgesia to targeted locations inRead More
Young Adult Retreat – June 26th – Highland Adventure Zoomed Out Edition
RSVP by June 11th E-mail RSVP@wpcnhf.org to request a registration form.
Urge Your Pennsylvania State Legislator to Ensure All Co-Pays Count
Urge your state senator to support Senate Bill 196, which would help Pennsylvanians afford the treatments they need by ensuring all co-pay assistance counts towards out-of-pocket requirements. Many individuals in the bleeding disorders community rely on co-pay assistance from drug manufacturers and charities to maintain access to their high-cost treatments. This financial assistance is oftenRead More
THE WPCNHF SCHOLARSHIP 2021-2022
Click here to download the 2021 Chapter Scholarship Application and Guidelines Who is eligible for the WPCNHF Scholarship? Any person or immediate family member of a person with hemophilia, von Willebrand Disease, or other inherited bleeding disorder is eligible to apply for this scholarship. The person with the bleeding disorder must either be a memberRead More
You Can Help Us Better Understand Hemophilia with Inhibitors
We want to make sure that everyone with hemophilia A or B understands the risk, diagnosis, and treatment of hemophilia with inhibitors. The National Hemophilia Foundation is conducting a national survey of the bleeding disorders community open to parents and caregivers of children with hemophilia A and B. This survey is for parents or caregiversRead More
Patient Assistance Resources for You and Your Family
Have you or your family been impacted by the COVID-19 crisis? WPCNHF and your bleeding disorders community are here to help. Below is a list of financial assistance programs and grant programs available. Please be sure to click the links below and check out the eligibility requirements for each program before applying. If you haveRead More
Pennie Extends COVID-19 Enrollment Period to August 15
Uninsured Pennsylvanians or those affected by COVID-19 can visit pennie.com and enroll in a plan through August 15 Harrisburg, PA – March 25, 2021 – On March 25, the Pennie Board of Directors unanimously voted to extend the current COVID-19 Enrollment Period to August 15, 2021, aligning with the federal extension which was announced earlier thisRead More
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