Team Rolling for Ryker is celebrating their fourth year Uniting for Bleeding Disorders and walking with the Western Pennsylvania bleeding disorders community! They walk to celebrate 3 year old Ryker, who is diagnosed with mild Hemophilia A. Just seven weeks after Ryker was born, he was diagnosed on Christmas Day after an emergency trip toRead More
Volunteer for the Unite for Bleeding Disorders Walk!
Event Day Volunteer Opportunities – Saturday, September 18th The Unite for Bleeding Disorders Walk will take place at the North Park Swimming Pool located on S. Ridge Drive in Allison Park, PA 15101. Set up – Arrive at 5:30 am – 7:30 am – Help set up tables, chairs, and signage. Run Registration & Check-InRead More
Meet Team Factor 5!
Team Captain, Stephanie, and her family joined the Unite for Bleeding Disorders Walk in 2019 under the name Sammi’s Supporters. This will be their third time walking with the community! This year, they’ve changed their team name from Sammi’s Supporters to Factor 5 to celebrate Samantha, Stephanie, and their newborn son, Lev. All three membersRead More
CALLING ALL YOUNG MEN WITH HEMOPHILIA A OR B, AGES 18-26 YEARS OLD!
The National Hemophilia Foundation (NHF) in partnership with the CDC, would like to invite you, to participate in an anonymous survey. The goal of the survey is to learn more about the knowledge, awareness, and attitudes of the bleeding disorders community towards prophy treatment (proactive treatment to prevent bleeds), as well as to find outRead More
Pennsylvania Passes Budget with the Hemophilia Line Item Fully Funded
We are excited to announce that on Wednesday, June 30th Governor Wolf signed the 2021 – 2022 State Budget that passed the Pennsylvania General Assembly on Friday, June 25. The hemophilia line item is fully funded at $959,000. Also included is language in the fiscal code that ensures hemophilia funding in the budget must beRead More
Last Call for WPCNHF’s Scholarship Applications!
We are still accepting applications for the 2021 WPCNHF Academic Scholarship. Any person or immediate family member of a person with hemophilia, von Willebrand Disease, or other inherited bleeding disorder is eligible to apply for this scholarship. Applications must be received or post marked by this Friday, July 2nd! Click here to Download the ScholarshipRead More
Virtual Program- Understanding Gene Therapy Research – July 8th
To register, please send your first and last name to rsvp@wpcnhf.org by 3pm on Thursday, July 8th. Please include Spark in the subject line. The link and call-in information will be sent to those who register.
HFA Mental Health First Aid Training on June 26, 2021
Hemophilia Federation of America (HFA) is pleased to offer free Mental Health First Aid training through an internationally renowned program by the National Council for Behavioral Health as part of HFA’s 2021 Mental Health and Wellness Initiative The next training will be Saturday, June 26th from noon-5:00 PM EST/11-4:00 PM CST/10-3:00 MST/ 9-2:00 PST (There isRead More
We Need Your Help! Reach Out to Your Pennsylvania State Legislators!
Urge your Pennsylvania state legislator to ensure all co-pays count and support new bills aimed at reforming the harmful insurance practices of prior authorization and step therapy! Read on to learn more about the bills being introduced in the Pennsylvania General Assembly. Urge Your Pennsylvania State Representative and State Senator to Support HB/SB 225 NewRead More
Study Looks at Neuraxial Anesthesia and Postpartum Complications in Hemophilia
Findings from a recently published study in the Journal of Anesthesia suggest that pregnant patients with hemophilia whose factor VIII or IX levels drop below 50% at the time of receiving neuraxial anesthesia are more likely to experience postpartum complications. Neuraxial anesthesia refers to the administration of local anesthetics and analgesia to targeted locations inRead More
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