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Insurance Department Announces Lower ACA Individual Plan Health Insurance Rates, Attributes Them to New State-Based Exchange and Reinsurance Program 

October 29, 2020 By Kara Dornish Leave a Comment

Harrisburg, PA – As the Wolf Administration pushes back on federal attempts to dismantle the Affordable Care Act amid a pandemic and the start of flu season, the Department of Insurance today announced Pennsylvania’s approved 2021 individual and small group Affordable Care Act (ACA) health insurance rates, highlighting a decrease in individual market rates attributable to the new state-based exchange and reinsurance program. “ThisRead More

Filed Under: Advocacy

Unite for Bleeding Disorders Tanks, Baseball Tees, and Shirts for sale!

October 15, 2020 By Jessica Lee Leave a Comment

Show your support for the bleeding disorders community of Western Pennsylvania by showing off your Unite pride! The Western Pennsylvania Chapter of the National Hemophilia Foundation is selling shirts and tank tops to raise funds for our Unite for Bleeding Disorders Walk! Check out our shirts and click the link for more information. Shirts canRead More

Filed Under: Uncategorized

2020 Unite for Bleeding Disorders Walk

October 13, 2020 By Jessica Lee Leave a Comment

This year, we celebrated our 12th Annual Unite for Bleeding Disorders Walk! The Walk was held on Saturday, October 10th and coincided with the National Hemophilia Foundation’s (NHF) nationwide Unite Day. While our walk moved to a virtual event and looked different than usual, friends, family, and supporters still came together to raise nearly $50,000Read More

Filed Under: Uncategorized

Saturday, October 10th – Virtual Walk Day Schedule of Events

September 30, 2020 By Kara Dornish Leave a Comment

Register in advance at: https://us02web.zoom.us/meeting/register/tZwpf–grDMvGNdNSfe_IlG-CrYUEcJDCLBE After registering, you will receive a confirmation email containing information about joining the meeting. You are welcome to attend at anytime throughout the day! We can’t wait to see you there! If you would like a breakout room for your team e-mail Jessica at jessica@wpcnhf.org.

Filed Under: Fundraiser, Making a Difference

Meet Sammi’s Supporters

September 23, 2020 By Jessica Lee Leave a Comment

Sammi’s Supporters are inspired by three-year old Samantha who is diagnosed with von Willebrand Disease (VWD). At 5 weeks old, her family discovered bruises on her body. After many tests, she was formally diagnosed at 18 months old. Around that time, Samantha’s mom, Stephanie, found out she also has VWD and so does her grandmother!Read More

Filed Under: Making a Difference Tagged With: sammi's supporters, unite, Unite for Bleeding Disorders, walk

VWD Awareness – THINKVWD.COM

September 18, 2020 By Kara Dornish Leave a Comment

VWD Awareness The website thinkvwd.com has been launched with a PSA featuring Alex Borstein to help raise awareness of VWD. VWD, or von Willebrand disease, is the most common inherited bleeding disorder caused by a deficient or defective clotting protein called von Willebrand factor. Some people may never know they have VWD unless they experienceRead More

Filed Under: Making a Difference

Paintball Tournament this Weekend!

September 17, 2020 By Kara Dornish Leave a Comment

Register at trpaintball.com go to events>Ballers for Bleeding Disorders 2020

Filed Under: Fundraiser

The Junior National Championship Summer Video Series – Part 3

September 10, 2020 By Kara Dornish Leave a Comment

In the third in a series of three instructional videos, professional golfer with Hemophilia A, Perry Parker talks about living with a bleeding disorder, while teaching some fundamentals of golf: mastering your full swing.  

Filed Under: Wellness

Meet Tori’s Team!

September 9, 2020 By Jessica Lee Leave a Comment

“Hi! My name is Tori and I’m the team captain for Tori’s Team. I walk for my sister and dad who, like me, all have Von Willebrand’s Disease. I participate in the walk as a way to give back to the organization that has given me so many opportunities. It’s a great way to raiseRead More

Filed Under: Uncategorized

Meet Team Rolling for Ryker!

August 26, 2020 By Jessica Lee Leave a Comment

Team Rolling for Ryker’s inspiration is a two-year-old boy named Ryker, who was diagnosed with Hemophilia A at 7 weeks old. “[I was] scared and I remember thinking it was an incorrect diagnosis,” team captain and Ryker’s mom, Mindy, said. “I thought they would redo his blood test and find out they were wrong… that inRead More

Filed Under: Uncategorized

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