Von Willy Who? By: Tracy Simon Sethman We discovered that our son had Von Willebrand Disease because of routine blood work to check his liver function due to a medication he had been on. Our son was in grade school when he was diagnosed. Not long after seeing the hematologist he had a serious kneeRead More
Meet Luke’s Lineup!
About Luke: Luke is a busy 3 year old, whose passions include Paw Patrol & Monster Trucks. He was diagnosed with Severe Hemophilia A at 6 months old & began prophy at 12 months. He’s happiest when he’s outside playing in the yard or walking around the zoo. He is looking forward to his firstRead More
Walking Doesn’t Cure Hemophilia… Fundraising Does!
The 2015 Hemophilia Walk is taking place at North Park – Harmar Grove on Saturday, September 12th. Registration check-in time starts at 9:00 am and walk start time is at 10:00 am. The walk this year will feature a DJ and photo booth by First Class Entertainment. Cynthia Jewel from Face Paint Pittsburgh, Balloon Artist-Billy Heh, andRead More
90’s Throwback Prom Fundraiser By: Nikole Scappe
90’s Throwback Prom Fundraiser By: Nikole Scappe On Friday, May 29th I held a 90’s throwback Prom Fundraiser at The Pub at Tonidale to benefit WPCNHF. Over the years, the Chapter has helped me not only financially but also physically and emotionally. I felt it was my turn to reciprocate all they have done forRead More
Bodyweight Basics
Using simple exercises to build muscle, burn calories By: Matt McMillen This article initially appeared in the Spring 2015 issue of Hemoware. Skip the gym, now you can exercise the do-it-yourself way at home using bodyweight exercises. Bodyweight exercises, which include pushups and situps, build muscle, burn calories and boost your heart health. Plus, yourRead More
Young Advocates
This article was originally published in the April 2015 issue of Hemaware. Young Advocates Making their mark at Washington Days By: Matt McMillen During Washington Days, you can make your story count. That’s what Nikole Scappe, 23, learned last year when she joined the National Hemophilia Foundation’s (NHF’s) annual advocacy push on CapitolRead More
Earthquake Relief for People with Bleeding Disorders in Nepal
Donate to the Nepal Hemophilia Society The recent earthquake in Nepal has devastated the country and impacted the local hemophilia community. From reports, we know that damage is extensive and very few will escape unaffected. Through Save One Life, WPCNHF sponsors Arjun Limbu who is a 23 year old from Nepal and a member of the NepalRead More
Run For Their Lives 5K
Join us in running a 5K for the lives of people with bleeding disorders in Western Pennsylvania. They are often unable to run for themselves because they suffer from complications of their disease. Your participation will help raise awareness of bleeding disorders and help raise needed funds for education and advocacy. Run through beautiful tree-linedRead More
The Third Annual Bowling for Bleeding Disorders Marathon
The Western Pennsylvania Chapter of the National Hemophilia Foundation Strikes Out Bleeding Disorders Starting on April 1, 2015 our Bowling for Bleeding Disorders fundraising campaign began. It ended on May 3rd with WPCNHF’s 3rd Annual Bowling for Bleeding Disorders bowling marathon. Bowling for Bleeding Disorders was once again held at Paradise Island Bowl in NevilleRead More
Camp Hot-to-Clot
Registration for Camp Hot-to-Clot is open! Please visit our registration website: www.campdoc.com REGISTRATION CLOSES FRIDAY, MAY 8. ALL MEDICAL AND HEALTH CARE PROVIDER FORMS MUST BE SUBMITTED BY FRIDAY, MAY 22. Exceptions cannot be made to the above deadlines, so please complete your child’s registration ASAP. If you need paper forms or have any questions, please sendRead More