Urge your state senator to support Senate Bill 196, which would help Pennsylvanians afford the treatments they need by ensuring all co-pay assistance counts towards out-of-pocket requirements. Many individuals in the bleeding disorders community rely on co-pay assistance from drug manufacturers and charities to maintain access to their high-cost treatments. This financial assistance is often
HARRISBURG/PHILADELPHIA/PITTSBURGH – Saturday, April 17, 2021 is “World Hemophilia Day,” which is an annual international awareness day for hemophilia and other bleeding disorders. Since 1989, World Hemophilia Day is the day the whole bleeding disorders community comes together to celebrate the continuous advances in treatment while raising awareness and bringing understanding and attention to the
WPCNHF is proud to share this proclamation from Governor Tom Wolf proclaiming April 17, 2021 World Hemophilia Day in Pennsylvania!
Meet our Advocacy Ambassadors Mason, Heather, and Marty. Their first experience advocating for the community took place in 2013 when they joined the Chapter for Harrisburg Day. They decided to join our advocacy efforts in order to give back to those who helped and supported them when Mason was first diagnosed with Factor X Deficiency
It’s Thursday, and you know what that means! For #ThankfulThursday we want to say thank you to Chris. He has been a member of our chapter since he was about 18 years old. Chris and his 9-year-old daughter are both diagnosed with Hemophilia B. He made it a priority to connect with other individuals living