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Ask Me Why I Advocate – The Bobro Family

March 23, 2020 By Jessica Lee Leave a Comment

Meet our Advocacy Ambassadors Mason, Heather, and Marty. Their first experience advocating for the community took place in 2013 when they joined the Chapter for Harrisburg Day. They decided to join our advocacy efforts in order to give back to those who helped and supported them when Mason was first diagnosed with Factor X DeficiencyRead More

Filed Under: Fundraiser, Making a Difference Tagged With: advocacy, harrisburg day, red tie campaign, washington days

#ThankfulThursday – Chris

March 19, 2020 By Jessica Lee Leave a Comment

It’s Thursday, and you know what that means! For #ThankfulThursday we want to say thank you to Chris. He has been a member of our chapter since he was about 18 years old. Chris and his 9-year-old daughter are both diagnosed with Hemophilia B. He made it a priority to connect with other individuals livingRead More

Filed Under: Making a Difference Tagged With: #thankful, advocacy, chris, team ladybug, thankful thursday

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  • Bleeding Disorders
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