Sammi’s Supporters are inspired by three-year old Samantha who is diagnosed with von Willebrand Disease (VWD). At 5 weeks old, her family discovered bruises on her body. After many tests, she was formally diagnosed at 18 months old. Around that time, Samantha’s mom, Stephanie, found out she also has VWD and so does her grandmother!
On August 14th, Kara, Jessica, and Mindy Perry-Stern, the 2019 Walk Chair, made an appearance on Wish 100.7 FM! They were interviewed by Kelly and talked about the bleeding disorders community, the Run for Their Lives 5K, the 7th semi-annual cornhole tournment, and of course, the Walk! While the interview only lasted about 2 minutes,
On July 9th, Kara, Tracy Sethman, the 2018 Unite for Bleeding Disorders Walk Chair, and Mindy Perry-Stern, the 2019 Walk Chair, made an appearance on Wish 99.7 FM’s Pittsburgh Focus! They were interviewed by Cris Winter and talked about the bleeding disorders community, the Run for Their Lives 5K, the 7th semi-annual cornhole tournment, and
Meet Cameron’s Walking Sticks! Janet, the team’s captain, is a carrier of hemophilia B and her son, Cameron, was diagnosed with hemophilia as a child. Cameron is 19 years old and is the inspiration behind the team. The first event Janet and her family ever attended was a holiday party hosted by the chapter. “That
Meet Conor! Conor is 3 years old and has Hemophilia A, but he doesn’t let that stop him from running around the house and causing trouble for his mom, Emily. Emily’s grandfather also had hemophilia, but that was the extent of her knowledge before Conor came around. “When I found out we were going to